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Who accesses befriending services near the end of life?:baseline results from a wait-list controlled trial (ELSA) of a volunteer befriending service in the last year of life

机译:谁将在寿命即将结束时使用友情服务?:基线是来自生命最后一年的志愿者友情服务的等待列表对照试验(ELSA)的结果

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摘要

Background: Volunteers are central to the provision of much end of life care, but their impact is little understood. Volunteer befriending services could work to reduce isolation, meet emotional needs and maintain a sense of community connectedness. The primary aim of this study is to evaluate the effectiveness of receiving care from a volunteer service plus usual care at improving quality of life than usual care alone for adults in the last year of life. Here we provide descriptive baseline data on trial participants. Study participants: Patients (estimated to be in their last year of life) referred to volunteer befriending services across 11 end of life care providers in England. Study design and methods: A wait-list controlled trial, with participants randomly allocated to intervention (immediate receipt of volunteering intervention) or wait list arm (four week wait for intervention). Data collection at baseline, 4, 8 (12) weeks: WHO QOL BREF, Loneliness scale, mMOS-SS, social networks. Intention to treat analysis includes fitting a linear mixed effect model to each outcome variable at 4, 8 and 12 weeks. ISRCTN 12929812
机译:背景:志愿人员是提供大量生命终结护理的核心,但对其影响知之甚少。志愿服务提供的服务可以减少与世隔绝,满足情感需求并保持社区联系感。这项研究的主要目的是评估在生命的最后一年中,与成年人单独接受常规护理相比,从志愿者服务中获得常规护理加上常规护理在改善生活质量方面的有效性。在这里,我们提供了有关试验参与者的描述性基准数据。研究参与者:英格兰的11家临终护理提供者中的患者(估计是在生命的最后一年)转介了志愿者志愿服务。研究设计和方法:一项等待名单对照试验,参与者被随机分配至干预(立即收到志愿干预)或等待名单组(等待干预四周)。在基线第4、8(12)周收集数据:WHO QOL BREF,孤独感量表,mMOS-SS,社交网络。治疗意向分析包括在第4、8和12周将线性混合效应模型拟合到每个结果变量。 ISRCTN 12929812

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